Telogen Effluvium = New Hair Style

Back in mid June, Ashley received another diagnosis - Telogen Effluvium. Telogen effluvium is a form of acute-onset, nonscarring alopecia that causes massive hair loss. It's brought on by stress/trauma.  I think the fight for the transplant, the surgery and several months of pain afterwards qualifies one under the stress/trauma category. 

The bad news of Telogen Effluvium is that Ashley is losing her hair.  Before her transplant, one of her medications caused extreme hair growth.... now she is having hair loss.  The poor girl can't win either way.

So a week or so ago, Ashely got an adorable hair cut! 

 And to Ashley's true form - she made the most of it.... even sporting some colorful wigs.

This hair cut is close to the same style she had back when she met Jeremy for the first time in Peru.  Here is a picture from that very first mission trip to Peru in 2007

Even with the new short hair cut..... it was time to shave it all off.  So on Saturday, the 7th it was wig shopping and shaving day!!!!


Here Ashley is getting ready to have her Brother-in-Law Billy shave all that fluff

Ashley with NO HAIR!!!

Ashley and her sister Kelly had a fun time shopping for wigs.  She tried on several and ended up with an adorable new Hair Style! 

I think it is a great look for this Kidney Cutie

There are more pictures on Facebook if you want to check them out HERE

Grateful Article

Here is the article Ashley wrote for the Sanford Herald.  There might have been a few editorial changes made, but this is pretty close to the exact article.

On May 21, 2012, I celebrated the 3 month anniversary of my kidney transplant. I know that a lot of people in our community have kept up with my story, so I wanted to make a public thank you to everyone who has supported me, whether through prayer, well wishes or financially.

My family moved to Lee County in 1985 from Harnett County. We were, in a lot of respects, in a strange new land. My sisters and I had to start new schools and my mom, who was already a student at CCTC, had to make friends in a new neighborhood. We didn’t have any family here. Our closest relative was my aunt who lived in Bunnlevel. For all the isolation we might have felt, we were greeted with welcome arms by essentially everyone we encountered. It was not long before my mom had made friends that were as close to her as sisters. My sisters were always going to a friend’s house or going to the movies. I feared that my disease would keep people from wanting to befriend me, but other than a few instances, that was never the case. People saw me for who I was, not for what I had. I am not just talking about other children; I am also talking about adults.

We lived in Sanford for 5 years. While there, I attended Jonesboro and J. Glenn Edwards Elementary. When I was 10, my mother bought a house in Broadway, so I had to switch schools once again. By the time I entered East Lee Middle School, I had attended 4 elementary schools.  Also, when I was 10, I experienced my first exacerbation of Cystic Fibrosis. I had spent my life doing breathing treatments, chest percussion and taking pills, but I never understood what having this disease really meant… until one day, I was climbing a dogwood tree in my front yard, and I felt something stabbing me in the chest. I dropped to the ground in pain. My mother rushed me to the emergency room at Duke and I was diagnosed with pneumonia. It was at that very moment that my childhood ended. I was still the energetic, mischievous child I had always been, but I understood something about the world that most children have the privilege of never even thinking about – that life could be devastating. After the doctors told us that I would have to be admitted, they left the room. I crawled into my mom’s lap and cried while she rocked me and assured me I’d be ok. In that moment, I only knew the comforting warmth of her embrace. Now, 21 years later, I shudder thinking about the fear she too must have felt and I am amazed by the strength it took for her to never reveal that to me.

It was only a week into my hospital stay when I received a package from Broadway Elementary containing around 50 handmade cards from other students in my grade wishing me well and telling me to hurry and get back to school. This is a story that would repeat itself all the way up to my high school graduation.  With every hospitalization, and honestly, there were too many to count, came letters, cards, phone calls, and visits. Most people who have been in a hospital will tell you that it is the last place to go to get rest. This is the truth and for me it was not just because doctors and nurses are coming in and out of your room 24 hours a day, but because between visits, reading my mail, decorating my room with my cards or flowers, and talking on the phone, there wasn’t any time to rest!  My senior year of high school I spent 4 months in the hospital, 3 at Duke and 1 at Baylor in Houston, Texas. During that time, the combination of my disease and my medications caused me to drop to a dangerously low weight and I even lost the ability to read. By the time I returned to school, I had taught myself how to read again and worked my way through a small part of Jack London’s Call of the Wild.  No one in my medical community thought I would be able to graduate and even tried to talk my mom into holding me back a year. But my mom never believed in holding me back from anything. I graduated that year with the rest of my class. I remember on graduation when my name was called out, everyone began cheering for me. After I had crossed the staged, I collapsed into the arms of my guidance counselor, Mrs. Kite. I was weak in the knees and sobbing uncontrollably. I had done it…I had defied every diagnosis thrown my way, and I had achieved my goal of living long enough to receive my high school diploma.

Graduation was 14 years ago, and I am still defying diagnoses. I will be 32 years old on August 1^st and my mother was originally told that I would never live to see 9 years old. My fight for life hasn’t been easy and has involved numerous surgeries and treatments, including a double lung transplant 11 years ago and my kidney transplant in February of this year. This fight, however, has not been fought alone. People have come out to my fundraisers in freezing cold, rainy weather. They have donated, even when the expense was too much for them to bear. I have received Facebook emails from children as young as 12 years old asking if they can donate their kidney to me. I have been given prayer after prayer begging God to heal me in some way, shape or form. People have even written letters to our government asking them to help me be able to afford my medical care. I feel as if my community has just as much stake in my health as I do or as my family does. I am beyond ecstatic to tell them that now, over 3 months post transplant, my kidney functions are the best they have been since I was in pediatrics. I am happy to say that I now can go an entire month, working 7 days a week, without needing a nap.

It is important to me to share my life with those who have held me up and helped me maintain my strength and dignity throughout my battle with Cystic Fibrosis. I want for other families who have children with this disease to know my story and, therefore, to know that their child has a fighting chance … but it is a fight and you have to be a warrior. I tell my stories with such personal candor because I feel they exemplify what the human spirit is capable of and because I think they clearly demonstrate how we live in a community that is willing to sacrifice for the good of another person, regardless of superficialities like race, religion or politics. So, again, I say thank you to everyone out there for going out of your way to not only ensure that I remain healthy, but also to make sure I get to wake up every morning to a brand new day!

Readers can follow my story at www.facebook.com/kidneycutie and by reading my living donor’s blog at www.jeremy-kate.com.

Thank you,

Ashley Quinones

Catawba Article

Here is the article from Catawba College's Campus Magazine.
You may also find the full issue HERE
and the article HERE

Thanks Catawba for sharing our story!

With Origins at Fair Catawba, "A Friendship Time Cannot Outwear"

Friendship, faith and a kidney have come together to irrevocably connect two Catawba College alumnae and the husband of one.
In February, Jeremy Morris of West Palm Beach, Fla., husband of Kate Merrell Morris '04, donated a kidney to his wife's best friend, Ashley Quinones '04 of Sanford. For Jeremy and Kate, the decision to donate the kidney was one grounded in faith.
"We just really felt like it was something we could do ... that God called us to do it," Kate explained in a phone interview before the Feb. 21 transplant surgery took place in Chapel Hill. "We have a strong belief that God has put us on a certain path back in 2007 and this has been the largest project for us to speak God in our life. It's much bigger than just a kidney."
Kate first met Ashley while both were students at Catawba. Kate remembered, "The first time I met Ashley, I was working in the Student Center doing my work study. Ashley came to see Jan Gillean [Catawba's director of student activities] and Jan wasn't there. Ashley laid down on the couch in the office down there and went to sleep. That was right before her double lung transplant.
"Later in the fall of 2002, Ashley and I sat next to each other going over on the plane to England. We went over and studied for the semester. Ashley and I really struck up the friendship on the first plane ride. She was adventurous like me."
Ashley's Cystic Fibrosis necessitated her double lung transplant in 2001 while she was a student at Catawba. Her studies were interrupted for most of the year due to her illness and recovery from the transplant, but the campus rallied around her. In April of 2001, her fellow students in Dr. Karl Hales Discussion and Parliamentary Procedures class organized a fundraising dance for her, "65 Roses for Ashley Quinones."  All proceeds went to the Children's Organ Transplant Association (COTA) in Ashley's name. The name "65 Roses" was chosen because many children with CF cannot say "Cystic Fibrosis" and the term comes out sounding like "65 roses."
While Kate and Ashley became dear friends while students at Catawba, Jeremy entered the picture after their graduation. Jeremy, a graduate of Palm Beach Atlantic University, and Kate attended the same church in West Palm Beach, Christ Fellowship. Ironically, Kate recalls that her relationship with Jeremy also really started when she sat beside him on the plane ride to Peru in 2007, where the three of them were going on a mission trip. The relationships formed on that mission trip in 2007 resulted in the marriage of Jeremy and Kate in 2009, where Ashley was a bridesmaid.
"In Peru, we talked about how we had this sibling type connection to each other," Ashley recalled about Jeremy in a phone interview shortly before this year's transplant operation. "Now, he and I are  going to share an organ — something that I can't share with anyone else.
"It hasn't been easy. It's been a rollercoaster this past year and a half and they've [Kate and Jeremy have] stuck with me. They've had every opportunity to pull out of this process. It's something that the three of us over this process have really had to come to terms with — that God is going to take care of it — we have to accept life on God's terms not on ours. It has been daily new lessons in our life that this process has taught us. They've chosen to stick with me. If Jeremy's scared, he doesn't show it — he's been a rock. Through my eyes, I see a really brave, courageous Christian man, and I see how lucky my best friend is and I'm happy for her. He says, 'Don't worry.'  He says that no matter what happens he'll never regret this decision.
"We very rarely talk about what this means in the big picture. There are certain things you can't express in words and this is one of them. At the end of the day, a thank you doesn't cut it, but Jeremy doesn't want any thanks from me. He's doing it because it's the right thing to do, not because of recognition or approval."
Ask Jeremy why he decided to donate his kidney to Ashley, and he will tell you because it was the right thing for him and Kate to do as a couple. The couple learned that Ashley needed a kidney when they visited her in the hospital on her 30th birthday in 2010.
Ashley remembered that visit and telling her friends about her dire situation. "Kate and Jeremy came to visit me and once they were face to face with me, I told them I needed a kidney transplant. It didn't take them 5 minutes to offer to donate. They both asked me what blood type and I told them A+ and so are both of them. They knew how sick I was — they saw me. I shared with them how scared I was to go home."
The hospital would only test one person at a time as a possible kidney donor match for Ashley and Jeremy stepped up. "I knew Kate was going to do it, but we discussed all the pros and cons and decided I was the best option. It is something I can do, not only for my wife but also for a dear friend.
"You can't make a decision based on the  what ifs and fears. We just really felt like it was something we could do and that God called us to do it. We wanted to share our story and our faith during this journey. That's why I've written the blog [jeremy-kate.blogspot.com] about our decision and process," he said.
That decision came to fruition on February 21st at UNC Chapel Hill. Both Jeremy and Ashley's surgeries were better than text book, according to their transplant surgeons. Two days after the surgery, Jeremy walked down to Ashley's room for what proved to be an emotion and tear filled reunion. There is an undeniable bond; "I am quite smitten with your husband" Ashley admitted to Kate. To which Kate replied "For you, I am ok with that."
The trio even named the kidney — JASH — a combination of Jeremy and Ashley.

Since the transplant surgery, Ashley and Jeremy have reached all their recovery milestones nicely. Jeremy has returned to his job as a systems administrator specialist and Kate to hers as owner and operator of Katydid Designs, a business she established while a student at Catawba. Ashley, who has used her undergraduate and graduate degrees in theatre arts and  master's classes in mental health counseling to work with marginalized communities, returned to work as an ESL Instructor and CAP worker this spring. Ashley and Jeremy were even able to plan for Ashley to make a surprise trip to Florida for Kate's birthday celebration Memorial Day weekend.
"I keep asking God, 'What are you teaching me in all of this?  Aren't you tired of giving me lessons?' " Ashley explained. "I always assume that's all about me, but this whole thing going on with my kidneys could be about someone else. The world doesn't revolve around me, and I forget that sometimes. Realizing that has helped me get through it. It's helped me fight to get through it. I've had to fight to get through it, fight to get the insurance, but it's never crossed my mind to ever give up on any of this. I look at Jeremy and see how brave he is through it and that helps as well."

EDITOR'S NOTE:Although Medicaid funded the cost of Ashley and Jeremy's transplant surgeries, many medical expenses remain. Those who wish to assist with this effort may make donations to COTA.
Friends may contact Ashley at www.facebook.com/kidneycutie and Kate and Jeremy at www.jeremy-kate.com.

Kidney Cutie in Print

Kidney Cutie is making headlines again!

The kidney donation of Jeremy, Kate and Ashley was featured in Catawba College's Campus Magazine.  Catawba College is both Kate & Ashley's alma mater, and the birthplace of their friendship.  Catawba is very dear to our hearts and we are so blessed to have them share our story.

   Click HERE if you would like to open the entire issue of Campus Magazine. Page 20

Truth be told, this is not the first time for Kate or Ashley to grace the pages of the Catawba's magazine.  While in school, Kate wrote an article about a mission trip to Mexico, had a feature article Katydid - the business she started at Catawba and was pictured at graduation.  Ashley graced the pages several times for her theater performances and had a featured article when she graduated (which showed Ashley fixing Kate's hat..... which is REALLY funny, considering it was Kate who just finished getting Ashley dressed properly in her gown... but that is a whole post in itself).  If I can locate these said article, I will make sure and post them.


Ashley was featured in The Sandford Herald. ; her local newspaper.  In the article, Ashley recounts her journey through Cystic Fibrosis and the many blessings to be thankful for.

Check back tomorrow, we will try to have the full articles in an easier to read format!